Every year World Haemophilia Day is celebrated on April 17 by the World Federation of Haemophilia (WFH) in order to raise awareness among the people of various regions about haemophilia and other bleeding disorders. This day was started in 1989 and April 17 was chosen to honour the birthday of Frank Schnabel, the founder of WFH in 1963.
Haemophilia is a group of genetic disorders which impair the human’s ability to control the clotting of blood. Nearly, 75% of people in the world are with bleeding disorders and are unaware about it and do not receive any care.
This year on April 17, the tradition of “Lighting it up red” will continue and people in cities around the world will light up major landmarks in red to show support for the global bleeding disorders community. The main objective is to enlighten people about bleeding disorders and their consequences and to let them know that WFH is there for them. This day helps the people to understand the fact that many people have inherited bleeding disorders and are not diagnosed and don’t have proper access to care.
It’s a special opportunity for everyone in our community to come together and support those with haemophilia and other inherited bleeding disorders.